What is HPACC?
Hawaii’s Partnership for Appropriate and Compassionate Care (HPACC)
is a coalition of health care, disability rights, advocacy, and educational
organizations united in opposition to any attempts to legalize physician-assisted
suicide (PAS) and physician-assisted death (PAD). We are also united
in support of positive, constructive alternatives to PAS and PAD, such
as more effective pain management, better diagnosis and treatment of
depression and greater use of hospice care.
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When & Why was HPACC Formed?
HPACC was formed in December 1998 by Hawaii Family Forum and the Hawaii
Medical Association. It was formed in response to the recommendation
of the majority of members of Governor Ben Cayetano’s Blue Ribbon
Panel on Living and Dying with Dignity. In June of 1998, the panel recommended
legalizing both PAS and PAD. The HPACC coalition is based on a model
from Michigan where a diverse group of organizations came together to
successfully defeat a November 3, 1998, ballot initiative to legalize
PAS in Michigan.
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PAS and PAD? – What’s the Difference?
In PAS, the physician provides the agent by which the patient ends his
or her own life. The agent, such as a prescription, is provided for the
primary purpose of causing death. In PAD, the physician actively participates
in the administration of a lethal agent with the intent to cause the
death of the patient. In PAD, the physician actually kills the patient.
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Are PAS and PAD the Same as Refusing Treatment?
No. This issue is not about a mentally competent adult’s right
to refuse treatment. That right currently exists, so individuals should
have no fear about medical technology prolonging life past the point
of natural death. This issue is about the right of
one person to assist another’s suicide or to directly cause
another’s death.
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What’s So Bad About PAS and PAD?
In order to fully understand the many concerns about legalized PAS and
PAD, consider for yourselves what has been said on the topic from the
organizations that represent some important voices.
The Physicians - Both the American Medical Association
and the Hawaii Medical Association stand in strong opposition to PAS
and PAD. PAS and PAD are contrary to the physician’s Hippocratic
Oath, the governing standard of medical ethics for more than two millennia.
This ancient Greek pledge ensures physicians will use their abilities
to help patients, never to harm them and never to help them commit suicide.
The AMA’s Vice President for ethical standards has said:
“ This is a defining moment in medicine. If doctors are allowed to kill
patients, the doctor-patient relationship will never be the same again. If killing
you is an option, how can I expect you to trust me to do all I can to heal you?”
The Nurses –- Both the American Nurses Association
and the Hawaii Nurses Association make clear that participation in assisted
suicide is a clear violation of their professional ethics. HNA has stated, “Central
to our position is our respect for persons, our role to promote, preserve
and protect human life . . . We question the logic that PAS is an ethical,
humane response . . . ”
Disability Rights Advocates – The goal of the
organization Not Dead Yet is to “save the lives of people with
disabilities.” This group wants people to understand that there
are no adequate safeguards that can protect the vulnerable from the abuse
of PAS.
“When all facts are considered, any alleged benefit to a few through
the legalization of PAS is far outweighed by the threat to the many people
with disabilities, terminal and not terminal, who live in a society which
devalues our lives.”
It is a well-established fact that in the Netherlands, where physician-assisted
death is practiced within the parameters of so-called safeguards, people
are killed without their knowledge or consent. The concern about abuse
and the slippery slope toward involuntary physician assisted death is
such a legitimate one that it was cited by the United States Supreme
Court in its 1997 unanimous decision declaring there is no constitutional
right to physician assisted suicide.
The Hospitals – The Healthcare Association of
Hawaii, which represents the state’s acute care hospitals and two-thirds
of the long term care beds, believes that all people are sacred regardless
of their physical or mental condition and opposes the notion that a physician
or any other person can assist an individual in taking his or her own
life.
Hospice Organizations – First rate end-of-life
care is the focus of hospice care, which focuses on pain management and
symptom control. Fundamental to hospice care is the philosophy that each
human life has value. PAS and PAD run directly contrary to those notions.
Hospice believes that pain is controllable and uncomfortable symptoms
can be managed – and that these are the things that deserve our
attention.
Pro-life Organizations - These organizations believe
in the sanctity of human life from conception to natural death. They
also believe that any right to assisted suicide will inevitably turn
into a duty for many of our elderly people. Consider it for yourselves.
Who among us wants to be a so-called “burden” on our families
and on society? If PAS and PAD were legal, why wouldn’t a vulnerable
elderly person feel subtle pressure to remove himself or herself from
the scene just a bit more quickly at the end of life?
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So, In Summary Form, What Are The Primary Objections?
- PAS and PAD will forever transform the role of physician from one
who preserves life to one who takes life. This will lead to a speedy
deterioration of the physician-patient relationship, which will adversely
affect the entire health care delivery system.
- PAS and PAD would leave society’s most vulnerable poor, sick,
elderly and disabled populations subject to abuse and coercion – no
matter what the proposed safeguards. The slippery slope to involuntary
PAD would become a reality, just as it has in the Netherlands.
- Any so-called right to die would inevitably lead to a duty to die,
with elderly patients feeling the subtle (and, perhaps, not so subtle)
obligation to end their lives prematurely so as not to be a burden
to their families and to society.
- PAS and PAD would immeasurably diminish the sanctity and value of
all human life.
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How Do You Respond to the Argument that this is About Individual Rights
and Autonomy?
We live in a society where individual rights have always been balanced
with what is best for the community as a whole. People do not have an
absolute right to control their own bodies. People do not have the right
to use drugs. People do not have a right to sell their bodies in prostitution.
People do not have a right to sell their internal organs. They don’t
have these rights because of the adverse impact these actions have upon
the rest of society.
The same is true in the case of PAS and PAD. People do not and should
not have the right to PAS and PAD because of the far greater overall
harm to society that would follow.
Additionally, PAS and PAD are not simply about the rights of an individual
person. Rather, a second person is required to become involved in the
taking of human life – and society is asked to condone it. The
practice of medicine is forced to transform itself and vulnerable populations
are forced to accept the risk of abuse and coercion.
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What About the Legal Issues?
- On June 26, 1997, the United States Supreme Court ruled unanimously
in Vacco v. Quill and Washington v. Glucksberg that there is no constitutional
right to PAS. In two opinions, written by Chief Justice William Renquist,
the Court cited many of the compelling legal, medical and social reasons
why states prohibit PAS. The Court also reiterated the vast difference
between a right to refuse unwanted medical treatment and the right
to assistance in committing suicide.
- Under current Hawaii law, PAS is classified as manslaughter (HRS
sec. 707-702), which is a class A felony, punishable by an indeterminate
term of imprisonment. PAD is classified as murder in the second degree
(HRS sec. 707-701.5), punishable by life in prison with the possibility
of parole.
- Current Hawaii law so disfavors assisted suicide that both the use
of force and the use of confinement are authorized to prevent another
from committing suicide.
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What Have Other States/Countries Done on this Issue?
New York -- While Oregon is the only state with legalized
PAS, the experience of the New York State Task Force on Life and the
Law is incredibly instructive. The membership of the 25-member task force
included prominent physicians, nurses, lawyers, academics, and religious
persons. While the members of the task force began and ended their deliberations
with vastly different views on the ethical acceptability of PAS and PAD,
their final conclusion was unanimous – existing law prohibiting
PAS and PAD should NOT BE CHANGED. From a public policy perspective,
they believed that any possible benefit was far outweighed by the overall
harm to society.
The Netherlands – The Netherlands is the only
place in the world where PAS and PAD are routinely practiced. The experience
serves as a frightening warning to all those considering legalized PAS
and PAD. The Government’s own study, often referred to as the Remmelink
Report, showed that in 1990 over 1000 patients were killed without having
given their explicit consent.
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What are Some of the Positive Alternatives to PAS and PAD?
HPACC members believe we can virtually eliminate all requests for PAS
and PAD by effectively addressing the underlying reasons people request
PAS and PAD in the first place. We know from a significant body of research
that a strong correlation exists between clinical depression or unmanaged
pain and requests for PAS or PAD. We also know that when properly treated,
many of the same patients no longer wish to commit suicide.
A few key, basic alternatives include:
- More effective pain management;
- Better diagnosis and treatment of depression; and,
- Increased use of hospice care.
Last year, the Hawaii Medical Association, along with the American Medical
Association initiated an ambitious, two-year project known as the Education
for Physicians on End-of-Life Care (EPEC) program. The goal is to help
improve the care given by physicians to dying patiens by developing a
standardized, core curriculum that will train physicians in the basic
knowledge and skills they need in order to appropriately care for patients
at the end of life.
The Hawaii Nurses Association supports legislation that promotes a clearer
understanding and respect for patients’ advance directives and
other policies designed to improve end-of-life care.
The Disability Rights organization, Not Dead Yet, urges improvements
in home attendant care services. Under current rules, seriously disabled
people are often forced into institutions in order to get the care they
need for everyday living.
It is these alternatives to PAS and PAD that demand our utmost attention
and commitment.
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Conclusion
For those who equate legalized PAS and PAD to death with dignity – they
would do well to heed the words of former Surgeon General C. Everett
Koop, M.D.
“Let those who seek death with dignity beware, lest they lose
life with dignity in the process.”
Instead of PAS and PAD, the members of HPACC support physician-assisted
living!
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